Famiglie con giovani con disabilità intellettiva profonda e multipla: crisi o rinascita?

Abstract

The Coronavirus disease outbreak, which we are currently still experiencing, has led several individuals to a period of isolation at home or in quarantine. This article raises the question of what impact this situation has had on families with people with diseases or disability. Furthermore, in terms of Quality of Life, there is a close relationship between the Quality of Life of the young person with disabilities and his/her family: the lower level of Quality of Life of the young person corresponds to a significant decrease in the Quality of Life of their family. In this last direction, researches focus on the impact in terms of Quality of Life, in relation to the burden of assistance and care required by the functioning profile of the person with disabilities. In this case, many scholars relate the Quality of Life of families to the presence or absence of adequate socio-health policies, resources and services aimed at providing forms of support for the family. Specifically, the presence of a person with PIMD requires all family members to adopt a daily answer to the extended and generalised needs of assistance, which often remain stable throughout all the lifespan, making parental and caregiving tasks particularly demanding. The interest of our research is to highlight the critical aspects of the new life contexts that affect families with young people with PIMD, in order to implement new research paths aimed to collect data and on new support needs.